Learning

I am learning to use David's big camera and here is a (large) sample of my beginnings.

Summer Sam

Checking out the Air and Space museum with Daddy!

I brainwashed him into loving this dog "lovey." He loves to sleep with it stuffed under his face like this:)

Sleepy face.

Smiling sleepy face!

What To Say?

I have been feeling for awhile that I should update on Kate, but I don't really know what to say. There are so many questions I have with no answers, so many thoughts, and so much emotion that I don't know how to compose it into readable material.

There are all the clinical facts. She is still having 1-4 seizures a day. Is on two different medicines the second of which we have been increasing the dosage of for 2 months straight trying to make a difference in her seizure activity. She is having side effects pretty much every time we bump up to a new dose but they seem to resolve after about a week...just in time to bump the dose again. She is in a period of having difficulty sleeping too, probably related to all the changes in medicine.

I can't tell you how much I want for her to get to a place where medicine is working and we can be stable for a time. I often worry that won't happen to be honest. It is hard to be giving these powerful medicines to my little girl and not be able to have her tell me how they make her feel. I worry if they will have long term effects on her body. I wonder if there are other avenues of treatment we should be pursuing and how would I find them? Am I doing all I can and being responsible? I am praying for God to lead us in wisdom. We need it so badly. I was reminded today of the scripture to be strong and take heart, and wait upon the Lord. It is hard to do, but not impossible because He is caring for us. And He is caring for our Kate. We have seen evidence recently that He ministers to her in ways we can't know and that has meant to much to me.

Kate does seem to mostly be doing well. She is very happy and makes some small developmental changes from week to week. She is really enjoying playing with Sam when he is in his exersaucer or johnny jump up. She has loved the times we've gone to the pool this summer and has gotten really good staying upright in the water with a little floatie around her middle. Real Simple magazine provides her unending amusement and she has dogeared several of my issues. In her therapy she is learning to put stickers on paper and color without eating the stickers or the crayons (baby steps friends, we make baby steps:) Laura, our therapist, has a little plastic birthday cake with candles that light up when you press a button and then the cake sings "Happy Birthday" and you can blow the candles out. It's really cute and Kate just loves it. She says "hap birtday!" and asks Laura for the cake first thing when she arrives. Those are a few little peaks into her life right now. I want to be grateful for each little step we see and not just look at the massive amount of things I hope to see in her. Kate isn't distressed about where she is developmentally and I don't want to be either!

Well, it is quite late and one or both kids will be up in the night so I should go get some rest. Thanks for reading and thanks even more for all your prayers. Nothing means more to us then prayers!

A Big Month for a Big Boy

Wow! Sam is 6 months old (as of June 14th.) The last month has brought a ton of changes for him!

-He sprouted his first two teeth (bottom left, then right)

- Learned to sit up.

- Can hold and examine toys and get them to his mouth, also transfer from hand to hand (this, combined with sitting, makes for wonderful play times for him!)

-Started solid foods which he devours without spilling more then a drop or two. So far he has had sweet potatoes, pears, and carrots. He has eaten all three with equal eagerness. I love how he opens his mouth and sometimes sticks his tongue out for another bite!

-He has begun holding his arms out to the sides when he wants to be picked up. It is one of the cutest things I've ever seen. If I ask him if he wants "up" he'll hold out his arms and wait for me to get him. Adorable I must say!

-He has gotten a little habit of slapping his right hand on his leg, or high chair tray, or whatever is there. It's really funny.

I took him to his 6 month appointment last Monday and his stats are as follows: 20 pounds 4 ounces (90%), 27 inches (75%), head is 43 cm (25%.) I asked the doctor if it's bad for his head to be so small compared to his body. She said that because he has followed the same growth curve and is meeting his milestones there is no reason to worry! While he still has some flatness to his head we are still waiting on the helmet because it has gotten better. His doctor doesn't think he'll need one at all!

Sam Playing

Sam is loving his excersaucer! I love how he pounds it with his fist to get the music to play! A few seconds before he was squealing tons and tons the way he does in the middle of this video but of course he stopped when I pulled out the camera:)

Notes on a 5 Month Old

My darling boy is now 5 months old and he is just bursting with cuteness! He laughs (especially at Kate) oohs and ahhs with increasing loudness, rolls both ways, can pivot around on his tummy, has the beginnings of an inch worm army crawl, loves his exersaucer, trembles with excitement when he sees an interesting toy, wants to stand not sit, is sleeping 100% of the time on his tummy and still wakes up around 6am to eat even after a 10:30pm feeding, weighs a whopping 19 pounds (according to my home scale which has always been very accurate to what he weighs at the pedi), is growing attached to a "lovey" and snuggles it SO sweetly, adores his daddy and so many more precious things!

This brother and sister are starting to really love each other! It is so precious to see.

Kisses from Kate!

Most of these pictures are from last weeks beach trip to New Smyrna, Fl. Sam really liked the water both of the ocean and the pool. He was super comfy thanks to this adorable bathing suit from his Greataunt Allie!

David was holding his hands down in the picture below because he is constantly chewing on his fingers these days. I think his bottom front teeth might be coming in! He would beat his sister to first teeth by 3 months if he does!

I was able to upload a video of his laughter!

Scroll Down

I finished a post today that I started two weeks ago about what God showed me through some of the events with Kate. For some reason Blogger published it to the date I wrote it on, not that I posted it on. If you want to read it you can scroll down to the April 4th entry entitled "Walking in the Valley"